Empowering People Aging with HIV

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N1: Deep Dive: Empowering People Aging with HIV

This presentation describes the SHARE board (a community advisory group comprised of older people living with HIV) and academic researchers. It explains the process to build the board and develop research engagement capacity, as well as assessing its output and ongoing evaluation. The results of its CBPR community-needs assessment will be explained.

At the end of this session, participants will be able to:

Differentiate (1) building a research advisory board, (2) building capacity for research engagement, and (3) engagement in community-based participatory research, from non-PCOR (patient-centered outcomes research).
Describe the evaluation and feedback data we have, showing how confidence, familiarity, and engagement have grown & evolved in the project’s first year.
Discuss the findings of n=37 semi-structured interviews and n=217 survey responses that were gathered by our SHARE Board members as a CBPR community needs assessment.

Susan Stiles (Moderator)

Senior Director, Healthy Aging Innovations

National Council on Aging

Susan Stiles, PhD, provides leadership in the design and development of consumer products that inspire, educate, and activate older adults. She’s been instrumental in bringing the Aging Mastery Program® to market and scaling it nationwide via strategic alliances and business partnerships. Stiles has 20+ years of experience in design thinking, multimedia, strategic communications, and management consulting.

Andy Rapoport

Project Manager, Leonard Schanfield Research Institute

CJE SeniorLife

Andy Rapoport is a Project Manager at the Leonard Schanfield Research Institute at CJE SeniorLife. He earned a Master?s in Public Health (MPH) from Northwestern University, with a concentration in Community Health Research. His undergraduate degrees are from the University of Chicago, in Biology (Neuroscience specialization) and Public Policy (Health, Inequality, & Society specialization). Andy is a co-author on a published population health research article. Andy has experience in community health at a local government?s health department. In this role, he engaged in partnership building with community-based organization, qualitative data collection & analysis, as well as the gathering & analysis of maps and data from the Census and other such sources. He also has past professional experience in research and operations at healthcare technology startup companies, one of which pertained to older adults and dementia. In that role, he helped to write and coordinate NIH grant submissions & build partnerships.

Melanie Reese

Member

SHARE Board

Melanie is a SHARE Board Member. Melanie has served on the Johns Hopkins ICTR Community Research Advisory Council since 2013. I am the Volunteer Community Research Advisor for JHCRN since 2019. Serve on the Johns Hopkins ACTG. Melanie is a member of Black Treatment Advocate Network. Melanie completed The We The People Research Cohort 1 HIV Prevention Advocate Certification Program March 1, 2021.